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Resources |
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Things turn out best for the people who make the best out of the way things
turn out |
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The
National Parkinson Foundation is the largest organization serving
persons affected by Parkinson disease throughout the world. The Foundation supports
research for a cure and programs dedicated to improving care and quality of
life. NPF provides information, support, and education for persons with Parkinson,
their families, and health care professionals.
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The
Parkinson Alliance is a national non-profit
organization dedicated to raising funds to help finance the most promising research
to find the cause and cure for Parkinson's disease. Our ultimate goal is to
help find a cure for this progressive, debilitating neurological disease.
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The
Parkinson's Institute is an independent,
not-for-profit organization conducting patient care and research activities
in the neurological specialty area of movement disorders. The Institute's mission
is to find the cause and cure for these disorders, to provide the best available
medical care to patients with movement disorders, to investigate better treatment
and diagnostic tools, and to develop prevention strategies.
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The
Michael J. Fox Foundation for Parkinson's Research is
dedicated to ensuring the development of a cure for Parkinson's disease within
this decade through an aggressively funded research agenda. Over $46 million
funded since November 2000.
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PLWP.org
(People Living With Parkinson's Disease) is an international
organization that is based solely on the internet, 99% of PLWP membership is
people who have been diagnosed with Parkinson's. PLWP does things in a determined,
well thought out manner. PLWP has spent 3 1/2 years building a foundation and
understanding how to manage such an organization as we have here.
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National
Family Caregivers Association (NFCA) offers
support, empowerment, education and advocacy to all those who care for chronically
ill, aged or disabled family members. Their website offers information and advice
for cargivers.
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National Institute of Neurological
Disorders (NIDS ) supports a broad range of studies aimed
at discovering the cause(s) of Parkinson's disease, finding better treatments,
and ultimately preventing and curing the disorder. |
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Parkinson Disease Clinical Trials provides a one-stop gateway
to information on Parkinson’s clinical research and clinical trials that
are currently looking for participants. By going to the site, you can learn
more about Parkinson’s disease. You can identify trials that are open
by type and by geographic location (e.g. within 50 miles of your zip code);
Sign-up to receive e-mail updates when new trials are added; and order print
materials including a new patient education brochure: Parkinson’s
Clinical Research:
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Parkinson's Action Network Founded
in 1991, PAN is the unified education and advocacy voice of the Parkinson’s
community—more than one million Americans and their families. Through
education and interaction with the Parkinson’s community, scientists,
lawmakers, opinion leaders, and the public, PAN leads the fight to ease the
burden and find a cure. PAN increases awareness about Parkinson’s disease
and seeks federal support for Parkinson’s research.
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The
American Parkinson Disease Association, Inc. Founded in 1961
to "ease the burden and find a cure" for Parkinson's disease. Headquartered
in New York, the organization focuses its energies on research, patient support,
education and raising public awareness of the disease. -
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Lifespan
is a non-profit organization in Rochester, New York dedicated
to providing information, guidance and services that help older adults take
on both the challenges and opportunities of longer life. Lifespan provides many
direct services, we advocate and we guide. Lifespan also provides community
and professional education.
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Home
Care of Rochester (HCR) is the only independent certified home
health care agency in Monroe County. HCR is not owned by an insurance company,
and not owned by a hospital. Discover why HealthGrades ranked us as the #1 agency
in Monroe County and learn more about our special home care programs.
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The Parkinson’s Disease Foundation (PDF)
is a national non-profit organization devoted to funding research, providing
education and advocating for Parkinson’s. We strive to bring help and
hope to as many as one million Americans who now suffer from this debilitating
condition.
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Nutrition
You Can Live With. Hosted by Kathrynne Holden, a registered
dietitian who specializes in diet for Parkinson's disease. Drawing on her former
hos pital experience, she has pioneered understanding of the unique nutrition
needs of people with Parkinson's. Her aim is to provide the knowledge needed
to prevent nutrition-related hospitalizations, make the best use of levodopa,
and maintain an independent lifestyle.
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Caregiver
Media Group Provides information, support and guidance for family
and professional caregivers. Founded in 1995, Caregiver Media Group produces
Today's Caregiver magazine, the first national magazine dedicated to
caregivers, the "Sharing Wisdom Caregivers Conferences",
and their web siteb which includes topic specific newsletters, online discussion
lists, back issue articles of Today's Caregiver magazine, chat rooms
and an online store. Caregiver Media Group and all of it's products are developed
for caregivers, about caregivers and by caregivers.
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Grassroots
Connection. This site has been crreated to increase knowledge
about neurologic health and related issues and to facilitate participation in
regaining and maintaining quality of life through group advocacy.
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CLIC-on-Health.
Brings together libraries, health organizations and associations, healthcare
delivery systems, and educational institutions in order to provide all the people
of the greater Rochester area with the high-quality healthcare information and
resources they need to make wise lifestyle and healthcare choices.
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Schwarz
Pharma - A website designed to provide patients and their healthcare
professionals with information about Parkinson's disease and PARCOPATM (carbidopa-levodopa
orally disintegrating tablets). If you are currently taking Sinemet® (carbidopa-levodopa)
Tablets, you should know that PARCOPA is a therapeutic alternative to Sinemet®
Tablets. It is available in the same strengths as Sinemet® Tablets. Your
doctor can prescribe PARCOPA using the same dosing and administration schedules
as Sinemet® Tablets.
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The
Society for Progressive Supranuclear Palsy - Progressive Supranuclear
Palsy )PSP is often misdiagnosed as Parkinson’s disease because of the
general slowing of movement. The Society's web site was developed to increase
awareness of progressive supranuclear palsy, advance research toward a cure,
educate health professionals and provide support, education and hope for persons
with PSP and their families.
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