Care Givers/Care Partners

Much of your life has changed, or will change, with the addition of Parkinson's Disease in your life. You are a now vital member of a healthcare team. You have become a care giver or care partner.

Care giving is never predictable. It requires great flexibility. The only way you can continue to be a care giver is by taking care of yourself. And you must take care of yourself first before you can successfully take care of anyone else. So don't be shy, timid or embarrassed to ask for support and help. Seek support from family, friends, clergy and other care givers or a local support group.

You are invited and encouraged to attend any of the Parkinson Support Group of Upstate New York's group meetings, especially our Care Giver Support Group meeting on the 2nd Saturday of the month. This Group will be changing its meeting location.Phone 234-5355 for information and location of future meetings. Click here for complete support group meeting schedule.

1. Choose to take charge of your life and don't let your loved one's illness or disability always take center stage.
2. Remember to be good to yourself. Love, honor and value yourself. You are doing a very hard job and you deserve some quality time just for you.
3. Watch out for signs of depression and don't delay getting professional help when you need it.
4. When people offer to help, accept the offer and suggest specific things they can do.
5. Educate yourself about your loved one's condition. Information is empowering.
6. There is a difference between caring and doing. Be open to technologies and ideas that promote your loved one's independence.
7. Trust you instincts. Most of the time they will lead you in the right direction.
8. Grieve for your losses and then allow yourself to dream new dreams.
9. Stand up for your rights as a caregiver and a citizen.
10. Seek support form other caregivers. There is great strength in knowing you are not alone.

1. Lifespan is a non-profit organization in Rochester, NY dedicated to providing information, guidance and services that help older adults take on both the challenges and opportunities of longer life.
   www.lifespan-roch.org
   
   
2. Home Care of Rochester (HCR) is the only independent certified home health care agency in Monroe County. Ranked as the #1 agency in Monroe County and learn more about our special home care programs. www.hcrcare.com
   
   
3. National Family Caregivers Association (NFCA) offers support, empowerment, education and advocacy to all those who care for chronically ill, aged or disabled family members. www.nfcacares.org
   
   
4. CaregiverStress.com An informative Web site suggesting ways to cope with caregiver stress, in order to make your caregiving role more rewarding. www.caregiverstress.com
   
   
5. Caregiver Media Group Provides information, support and guidance for family and professional caregivers. www.caregiver911.com